23 June 2015

DAY FIFTY-ONE

Slooooow progress. Very slow. My arms and shins are itchy all over and there are times when I worry the deep itch is back. In my head, I’m screaming “NOOOOOOOOOOOOOO!” but my fingers are like “uhhh that’s so good, keep going, yeah, uh, ooh, up a bit, yeah”. Even the bruises have returned.
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But hey, look at how great the skin on my stomach is after 10 days of 3 apps a day:
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I’ve been using the undiluted antibiotic+steroid once a day on forehead (which is teetering on fine) and lower back (which is now looking B-E-A-U-tiful and no longer itches at all), plus compound 3x a day. I think I may have read Dr Aron’s instructions wrong and might not be supposed to put the compound on as well, but I now understand my skin enough to know that a drop from 4x to 1x is going to result in me quickly sinking into an abyss of scaly redness.IMAG2445
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The rest of me is still stuck on 5 apps a day which is a paaaaaaaain; I’m conscious of the time constraints before steroid use becomes a problem (although from what I’ve read I’m fairly confident that I have a few years before that’s a real scare, and Dr Aron claims never to have seen a case of skin-thinning in his decades of treating eczema patients).
Dr A is on holiday from tomorrow until July, so it’s all me from now on! Not as worried as I probably should be…
The Facebook support group is a fantastic safety-net and I would have been so discouraged without them. Saying that, it can be disappointing when I see kids who started the same time as me with similar or worse severities to be on 2121 by now and I’m still stuck on mostly 5!
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Maybe it’s easier for kids because they have a responsible adult to control everything they come into contact with? It’s so easy for me to forget 😦 A few weeks ago I told my colleague I was going gluten- and dairy-free moments after spreading butter on my toast. Well done, Lozzy.
Anyway, I’m going to Cyprus for 10 days to chill with the family so posting might be difficult. The good news is that Dr Aron has approved me to swim in the pool! Toodle doo!

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  • DAY SEVENTY-SIX This week I’ve spent 2 nights in a tent in north Wales and one night in a tent in Oxfordshire. During one trip, I went head-first on Europe’s fastest… Read More
  • DAY EIGHTY-FIVE Oh my Spaghetti Monster, I’ve been told to go down to 2 apps a day on most of my body. It’s taken me so long and so many ups and downs to get to … Read More
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